Cally talks about Smith-Magenis Syndrome, Special Olympics and her girl Amelie
Mandy and Kate chat to Cally, Director of Smith-Magenis Syndrome Australia and Chair of Melbourne Inner East Special Olympics Club. Cally’s 18-year-old daughter Amelie was diagnosed with rare chromosonal disorder Smith-Magenis Syndrome (SMS) at age three.
Cally chats about Amelie’s life with SMS, including some chronic sleep issues that saw her falling asleep in funny places during the day, the commonly overlapping symptoms with autism, ADHD, OCD and sensory issues, and her journey through school in the special education system.
Cally has been involved in Smith-Magenis Syndrome Australia for several years and is now their Director. The organisation’s key activities include raising awareness, particularly on Smith-Magenis Awareness Day coming up shortly on November 17, welcoming and supporting families of newly-diagnosed children with education, resources and community, and running camps.
Cally is also the powerhouse Chair of Melbourne Inner East Specialy Olympics Club, where Amelie is involved in athletics and snow skiing. This is where she met Mandy and Molly! Cally talks about her experiences attending the Special Olympics National Games in 2022, and the World Games in Berlin earlier this year. Thanks for sharing your story with us Cally!
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