Our life with Angelman Syndrome - Danielle Cullinan

In this very special episode Sinead is joined by a mother of 2 Danielle Cullinan to talk about Angelman Syndrome - a very rare genetic disorder that her eldest daughter Clara was born with. 

In this episode she takes us on an extraordinary journey to a diagnosis, connecting with other families who have a child with Angelman Syndrome, how she had her husband both found different coping strategies and their decision to have another baby. 

We also talk about the realities of a severely disablied child in a society that isn’t build to support them. From being told that Clara could no longer attend creche to the chance that there will not be a school place for her either - this episode shines a light on how a young family are trying to work, parent, love and seem to have to fight for what Clara needs at every turn.

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